Disease Related Associations

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Glaucoma Research Foundation
Provides information and resources on GRF programs, glaucoma and glaucoma-related issues.

 
Food Allergy Network
Mission is to increase public awareness about food allergies and anaphylaxis, to provide education, and to advance research.

 
National Multiple Sclerosis Society
Information, news and research sources.

 
Wegener's Granulomatosis Support Group, Inc.
Non-profit organization dedicated to providing emotional and informational support and to supporting research into the cause and cure of WG.

 
The Arts Dyslexia Trust
Organization that offers help to dyslexic students and adults in their art/design training and careers, in addition to advising educators on the topic.

 
National Association for Visually Handicapped
Purpose is to work with the visually impaired to live with as little disruption as possible; supply support to maintain independence.

 
Allergy and Asthma Disease Management Center
Links to informational sources and professional organizations.

 
Arthritis Foundation
Focus on research, prevention and quality of life.

 
National Osteoporosis Foundation
Advocacy, research and educational efforts to advance osteoporosis on the nation’s health care agenda.

 
Sickle Cell Information Center
Provide education, news, research updates and world wide sickle cell resources.

 
Aplastic Anemia Foundation of America
Resource directory; provide educational materials and medical information; financially support research for aplastic anemia and myelodysplastic syndromes.

 
American Council of the Blind
Representative national organization of blind people; focus on social, economic and cultural levels; improving educational and rehabilitation facilities and opportunities.

 
Arthritis National Research Foundation
Primary purpose is to provide financial support to research studies aimed at discovering new knowledge for the prevention, treatment and cure of arthritis and other rheumatic diseases.

 
National Spinal Cord Injury Association
Focus is on crisis management, rehabilitation and resources.

 
Mayo Clinic Health Oasis
Health information updated each weekday on a variety of conditions and diseases.

 
American Pain Society
Multidisciplinary organization of basic and clinical scientists, practicing clinicians, policy analysts, to advance pain-related research, education, treatment and professional practice.

 
Macular Degeneration Foundation
Discovering the cause and developing cures; informing and educating patients, professionals and the public at risk; identifying best preventative and therapeutic modalities.

 
National Rosacea Society
News, information on grant programs, and materials request forms.

 
Spina Bifida Association of America
Goal is to promote the prevention of and address the specific needs of the spina bifida community.

 
American Brain Tumor Association
Brain tumor information, treatment explanations, support resources, and research updates.

 
American Tinnitus Association
Initiatives include funding tinnitus research, producing and distributing educational materials for both patients and healthcare professionals, and promoting hearing protection programs.

 
American Council for Headache Education
Nonprofit patient-health professional partnership dedicated to advancing the treatment and management of headache.

 
CF- WEB: The Cystic Fibrosis Website
Publications, international organization links, as well as to news, information and fundraisers.

 
Asthma and Allergy Foundation of America
Dedicated to improving the quality of life for people with asthma and allergies through education, advocacy and research.

 
American Association for the Study of Liver Diseases
Education, research, publications, public policy and organizational information.

 
American Stroke Association
Official site of the American Stroke Association. Provides information and resources for the public and professionals about stroke and stroke prevention.

 
Turner's Syndrome Society
Offers support groups, social activities, education forums and public awareness.

 
Coalition on Organ and Tissue Donation
Not-for-profit alliance of local coalitions and national organizations to promote organ and tissue donation.

 
Alzheimer's Association
Diagnosis, treatment options and other informational links.

 
Missouri Arthritis Rehabilitation Research and Training Center
Federally funded arthritis rehabilitation research and training center.

 
Congenital Heart Disease Information and Resources
Provide information and resources on congenital and acquired heart disease, congenital heart defects.

 
National Down Syndrome Society
Non-governmental supporter of Down syndrome research in the United States.

 
American Society for Bone and Mineral Research
Professional medical and scientific society established to bring together clinical and experimental scientists and physicians involved in the study of bone and mineral metabolism.

 
Osteoporosis and Related Bone Diseases
Provide link to resources and information on metabolic bone diseases, including osteoporosis, Paget's disease of the bone, osteogenesis imperfecta, and hyperparathyroidism.

 
National Organization for Albinism and Hypopigmentation
Volunteer organization for persons involved with the condition of albinism, to promote research and education.

 
Epilepsy Foundation of America
Offers research and research training grants and fellowships to scientists and supports national public education, legal and government advocacy, a national library, toll free information services, media campaigns, and a broad array of education.

 
American Dietetic Association
Press releases, position papers, fact sheets and conference information.

 
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